NOMID and COVID multisystem inflammatory disease

Can there be a relationship to the coronavirus-19 (COVID-19) that affects young children? People are talking about it. It’s called NOMID or Neonatal onset multisystem inflammatory disease. Other than both being inflammatory diseases. Are they siblings or distant cousins? They may not be in the same family! What’s the link?

It’s rare. As we immerse ourselves at coronavirus prevention, a disease emerged that affects kids from 2-15. Neonatal-onset multisystem inflammatory disease is a rare genetic periodic fever syndrome which causes uncontrolled inflammation in multiple parts of the body starting in the newborn period. Symptoms include skin rashes, severe arthritis, and chronic meningitis leading to neurologic damage. It’s there since birth but symptoms can show anytime. Is YOUR child safe from multisystem inflammatory disease?

Neonatal onset multisystem inflammatory disease (NOMID) is a disorder that causes persistent inflammation and tissue damage primarily affecting the nervous system, skin, and joints. Recurrent episodes of mild fever may also occur in this disorder. People with NOMID have a skin rash that is usually present from birth.

NOMID is also known as chronic infantile neurologic cutaneous articular (CINCA) syndrome. As a syndrome, it encompasses many neurological diseases and symptoms. While NOMID is a very rare disorder. Only about 100 affected individuals with different ethnic backgrounds have been widely reported. Males and females are equally affected. Yet, within the coronavirus pandemic. NOMID tips the scales to focus on children’s susceptibilities. Some believe there are genetic mutations, much like DDX3, Muscular Dystrophy, and Multiple Sclerosis…among many.

While there are some standard therapies and some under investigation, NOMID
has no cures, much like other diseases from genetic mutations.

NOMID is an American term for CINCA. Statistics of possible CINCA prevalence has been done elsewhere. The exact prevalence of chronic infantile neurological, cutaneous, and articular (CINCA) syndrome is unknown, it is estimated that the whole spectrum of CAPS has a prevalence of 1/360,000 in France, CINCA being the less common form. In the Eurofever registry, collecting information on over 250 patients with NLRP3 mutation, about 25% of the patients present the most severe CINCA phenotype.

Symptoms noted, may confuse parents and pediatricians:

Chronic aseptic meningitis

Progressive profound sensorineural hearing loss in >70%

Increased intracranial pressure

Papilledema – Papilledema is a serious medical condition where the optic nerve at the back of the eye becomes swollen. Symptoms can include visual disturbances, headaches, and nausea.

Headache

Ventriculomegaly – Ventriculomegaly, also known as hydrocephalus, is a condition in which the CSF-filled structures within the brain become larger than normal. As a result, the large ventricles can inhibit the proper development of the brain.

Cerebral atrophy

Seizures

Significant developmental delay

Where 3 or 4 symptoms are chronically present, genetic testing would be required. Advice is to see a pediatric neurologist.

Bringing NOMID/CINCA into the spotlight is that some therapies used seem to also work on COVID-19 patients. This is dissimilar as COVID-19 is viral and NOMID/CINCA is genetic. Whether this loose relationship is better for NOMID patients or COVID patients is like grasping at straws.

Parenting is difficult. Comparing NOMID to COVID-19 leads to overwhelming concerns. Both are actively still seeking treatmets, cures, vaccines. Symptomatically COVID is more respiratory and NOMID relates to irregular brain pressures. I don’t see how one relates to the other.

Coronavirus Travel avoiding COVID easily tea tree oil

Living is a contact sport. When a virus seems to spread, human contact is compromised and extra perseverance is taken at hand washing. So Purelle and other disinfectant gels and wipes are out of stock. What about those of us who didn’t prep for this coronavirus epidemic? Think out-of-the box. Tea Tree Oil has both antibacteria, and anti-fungal properties.

According to Medical News Today, Tea tree oil is distilled from the leaves of the Melaleuca alternifolia plant, found in Australia. The oil possesses antibacterial, anti-inflammatory, antiviral, and antifungal properties. A person can treat acne, athlete’s foot, contact dermatitis or head lice using tea tree oil.

Now coronavirus is a result of a virus infection. Many colds are based on viruses. Antibacterial wipes may not be enough. You need to attack viruses. According to Healthline, Tea tree oil has antiviral properties that have proven to be effective against common pathogens. A 2001 study found that a combination of tea tree oil and eucalyptus oil worked effectively against the herpes simplex virus. A 2013 study found that tea tree oil could prevent the spread of influenza.

Researchers, in a 2018 study, have used the antibacterial properties of tea tree oil to create a bioactive coating that keeps bacteria away from medical devices. The findings may help to stave off millions of infections per year. Using special techniques, essential oils can now be turned into a hard, antibacterial surface that protects against infection.

An ideal natural alternative to chemical-based sanitizers, tea tree oil-based sanitizers can be just as effective when it comes to killing several strains of illness-causing bacteria and even more effective with others.

E coli, for instance, was found in some studies to be more effectively broken up and wiped out by tea tree-based agents than when attacked with commercially produced chemical products. Another tick in the tea tree oil box when choosing a hand sanitizer has to come with the fact that it is eminently more environmentally friendly from leaf to litter than the many branded varieties of hand soap.

Essential tea tree oil is not a very expensive essential oil in comparison to other types of oils. You can also use face washes and gels, which contain this oil to soothe your skin on a daily basis.

The funny element is that as hand sanitizers are being bought in response to this possible coronavirus threat, tea tree oil is available. People just don’t think out-of-the-box.

In an article from Medical News Today, Eucalyptus oil shows anti-viral activity as a vapor. Red thyme oil is effective against flu viruses as a liquid phase. Cinnamon leaf oil also shows antiviral activity as a liquid. Tea tree oil is effective against the flu virus within 5 to 10 minutes of exposure, as found in another study.

Admittedly, most studies are small but one study in 2017 tested 3 essential oil mixes and noted that they had antibacteria and anti-fungus properties.

Essential oils have many benefits to protect against coronavirus. Like most beneficial things, there are some consequences. A few essential oils can cause burning when exposed to ultra-violet (UV) lighting. So, before laying out in the sun at the beach or heading to a tanning salon, it is important to ensure that you wait at least 12 hours once a photosensitizing oil has been applied to the skin. Depending on the oil and length of exposure to the sun, skin reactions from certain oils can range from mild discoloration to severe swelling and blistering burns. So read about Tea Tree Oil and become aware that while most people have no side effects, some may develop.

Coronavirus is threatening. Weighing essential oils, that have anti-viral properties, as protection is wise. When trying to act normally with a coronavirus in the environment, something like Tea Tree Oil is a healthy alternative.